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DiscussionHe starts chemo: Now what do I expect?
Pancreatic Cancer | Last Active: Sep 11, 2023 | Replies (26)Comment receiving replies
Replies to "metallic tastes? oh joy...he already complains of that and its not even started...and any ideas on..."
Fwiw, I had almost no experience of metallic taste (just a ittle, on infusion day), and no problems with neuropathy. Keep in mind that everyone is different.
I had a lot of nausea, diarrhea, and gas. And, my tastebuds were altered -- I wanted bland foods (mashed potatoes, plain chicken, a carrots-peas-corn blend). My last chemo was on 8-2-23, and my taste buds are about 10% back to what they were before chemo.
Oh, and hair loss ... I've lost about 50% of my hair. It's a little noticeable at the front / on my crown, but not too bad.
I have a bunch of "rash guards" -- skin tight lycra shirts for surfing that prevent fiberglass and surfboard wax from causing a rash on your chest, while doubling as sun protection. My solution was to just put the shirt on over the pump, and that held it in place and kept the tubes from flopping around. It's a breathable and thin enough fabric that you don't get all hot and sweaty while sleeping, and it worked for me.
Alternatives could include Ace bandages, super-small backpack worn backward (on chest), sports bras, etc.
Another alternative to ask your infusion center about is whether they have any of the new, disposable elastomeric pumps. One bonus is that you don't have to return it. But I've heard a few pros and cons about how well they work. The fluid flow is somewhat temperature-sensitive, so there may be issues with people who cover up with 8 blankets or leave the windows open during a blizzard.