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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@SusanEllen66

@ronoejello1 Hi Ron, sounds like you have run the usual neuropathy race.
Many of us go to more than one neurologist hoping for something better than what we got from the last one. Unfortunately, that rarely happens.
I’m curious about the doctor you are waiting to see. He thinks outside the box in what way?

If anyone tells you that neuropathy can be cured, run the other way…I’m sure you know that, but the pain we feel sometimes makes us desperate for an answer.

I have Chronic Inflammatory Demyelinating Polyneuropathy. My neurologist just started me on Gabapentin. I’m only taking 100mg because it’s too sedating for me.
I’m not able to take any of the usual pain medication given for this because again, I would spend my days sleeping.

I am impressed by how you can walk that far every day. The polyneuropathy causes my legs to be really weak so I can only stand for short periods of time. My balance is very bad, and I have foot drop.

Isn’t life grand!

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Replies to "@ronoejello1 Hi Ron, sounds like you have run the usual neuropathy race. Many of us go..."

Gabapentin only made me dizzy!
The only relief I receive is from the oxycodone, and that of course is more euphoric than substantial, but it does help. I have foun that taking it in small doses periodically helps.
As for the doctor, Dr. Walk from the U of M not sure yet but I’ll let you know. He’s difficult to get an appointment with, but through a cancellation I will see him today!😊
And I agree with you regarding doctors, run if there is a promise of a cure.
I’m looking for moderation and some reduction of pain.
Explaining to others UGH!!
I wish for you🙏some relief, and hope for you a better future!
Stay as positive as you can!
Warmest Regards,
Ron