Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
It’s a malady that is certainly not tenuous. Explaining the pain to others is not easy.
I am currently off the usual prescriptions gabapentin, pregabalin etc as they offered no relief.
I do take Alpha Lopoic Acid
with a small degree of help. Additionally, I take 15 mil. of oxycodone at varied doses during the day 5@5am 2.5@ 11-12 and 7.5 @6-7pm
I have found this to ease my pain through the day.
I have seen 2-neurologists providing little value. I will be seeing another that apparently, thinks outside of the box, and is world renown. It will take me 6 months to get an appointment UGH!!
Physical therapy has done nothing. I currently average over 8000 steps a day but although my strength is better my pain persists.
Thank you allowing my loquacious diatribe
It makes me feel not alone
Regards,
Ron
I hope 🙏you find some relief
Replies to "It’s a malady that is certainly not tenuous. Explaining the pain to others is not easy...."
Hi, Ron
I too am impressed with how far you're able to walk. 8,000 steps is remarkable! It certainly would be for me. Being unable to walk with ease is my No. 1 disappointment as a result of my PN. Walking with ease is also the No. 1 thing I would like to recover if the day should ever come that's possible.
All the best to you!
Ray
Connect
@ronoejello1 Hi Ron, sounds like you have run the usual neuropathy race.
Many of us go to more than one neurologist hoping for something better than what we got from the last one. Unfortunately, that rarely happens.
I’m curious about the doctor you are waiting to see. He thinks outside the box in what way?
If anyone tells you that neuropathy can be cured, run the other way…I’m sure you know that, but the pain we feel sometimes makes us desperate for an answer.
I have Chronic Inflammatory Demyelinating Polyneuropathy. My neurologist just started me on Gabapentin. I’m only taking 100mg because it’s too sedating for me.
I’m not able to take any of the usual pain medication given for this because again, I would spend my days sleeping.
I am impressed by how you can walk that far every day. The polyneuropathy causes my legs to be really weak so I can only stand for short periods of time. My balance is very bad, and I have foot drop.
Isn’t life grand!