← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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@laurie6

While I bet it’s true about autoimmune stuff, nobody told me the raynauds is autoimmune or I might have been able to track other signs, like you mention.

We are all different but I’m a NO on all of those except for anemic renal insufficiency.

Took 50 plus years of being anemic to discover this. It’s because the kidneys don’t complain loudly enough to cause alarm in early stages (in my case).

I suffered my entire life with various health mysteries and still do. It’s not as bad as other people have it (anemia), but I’ve been mysteriously unable to work for 25 years and I still don’t have enough wrong to apply for disability

And live to get it.

By having no VISIBLE illness, people don’t give a dam and they assume 1) laziness and 2) hypochondria and sometimes 3) seeking attention

Show them the photo of your white fingers.

Good luck explaining celiac disease!

And for @covidstinks2023, I hope you don’t have rheumatoid issues or lupus issues.

I have some lupus but not enough to call it that.

The rheumatologist experience was scary and I qualified for about 80% of that disease and ended up a big NO.

Hope you get the same response and good luck on your journey navigating through this stuff (I tend to wonder about covid being an aggravating factor but I had anemia AND raynauds before COVID was born).

Maybe the progression of illness is from covid. A lot of people are suddenly ill and dying.

Mom got a Parkinson’s diagnosis AFTER covid.

SUCKS! We are together but we are broken…

Keep advocating for yourself. They didn’t have portal medical record keeping when I got started or I might have made some different lifestyle changes years ago (or at least known I should and specifically what those options WERE.

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Replies to "While I bet it’s true about autoimmune stuff, nobody told me the raynauds is autoimmune or..."

It appears that autoimmune diseases are a mixed bag with a rheumatologist and hard to diagnose. You are so right. You have to be your own advocate. Even when your levels are elevated or high, its hard to get a diagnosis. Praying for you and your mom. Hugs & Prayers....