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Survivorship: anyone else struggling?

Gynecologic Cancers | Last Active: Sep 2, 2023 | Replies (47)

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@naturegirl5

I have my next cancer surveillance next week on Tuesday, September 5. I was diagnosed with endometrial cancer (adenocarcinoma, Stage 1a, FIGO Grade 1) in July, 2019. I had a hysterectomy in August, 2019 and then a recurrence in October 2021. The recurrence was found by my nurse practitioner who does a complete pelvic exam with a speculum. She found a little polyp-like (a few millimeters in size) on the vaginal cuff. I had 28 sessions of external pelvic radiation and 2 sessions of brachytherapy. Since the recurrence I have returned to my nurse practitioner every 4 months since the recurrence.

Cancer almost never leaves my mind from day-to-day. However, I did just return from a 3 week vacation in Canada. I was relaxed and happy the entire time and honestly did not think all that much about cancer. Now that I'm back home and have an appointment next week it's on my mind again. I figure I need to just let the thoughts and emotions be there as they come in waves. But it's not easy and no amount of wishing otherwise will help. This is my reality now.

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Replies to "I have my next cancer surveillance next week on Tuesday, September 5. I was diagnosed with..."

Thanks for sharing your experience of recurrence, and I second (third, fourth) the insistence of a speculum exam during follow up visits. I'm a former nurse-midwife and though I was not involved in oncology, I was taught that a pelvic exam includes a speculum exam, so to hear that providers are skipping this is remarkable.