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← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)Comment receiving replies
REPLY TO ALL: I have had Raynaud's for about 10 years. It worsened after that ugly "C" word.....COVID. My fingers turn blue more often & toes and my hands and feet stay cold a lot. Putting ice into glasses is painful and I keep the warm water running at the sink and put my hands under them immediately. It takes the pain away quickly. You are correct. If you have one autoimmune disease, you tend to have more. Raynaud's tends to go hand in hand with Lupus. The rheumatologist jury is still out on that one for me. Hugs & Prayers...
Replies to "REPLY TO ALL: I have had Raynaud's for about 10 years. It worsened after that ugly..."
Just great, but thanks for turning me on to Raynaud's with Lupus. My genetics say I am involved with that as well. Been wondering why my fingers and toes turn very blue . Rats. But thanks again. oldkarl
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While I bet it’s true about autoimmune stuff, nobody told me the raynauds is autoimmune or I might have been able to track other signs, like you mention.
We are all different but I’m a NO on all of those except for anemic renal insufficiency.
Took 50 plus years of being anemic to discover this. It’s because the kidneys don’t complain loudly enough to cause alarm in early stages (in my case).
I suffered my entire life with various health mysteries and still do. It’s not as bad as other people have it (anemia), but I’ve been mysteriously unable to work for 25 years and I still don’t have enough wrong to apply for disability
And live to get it.
By having no VISIBLE illness, people don’t give a dam and they assume 1) laziness and 2) hypochondria and sometimes 3) seeking attention
Show them the photo of your white fingers.
Good luck explaining celiac disease!
And for @covidstinks2023, I hope you don’t have rheumatoid issues or lupus issues.
I have some lupus but not enough to call it that.
The rheumatologist experience was scary and I qualified for about 80% of that disease and ended up a big NO.
Hope you get the same response and good luck on your journey navigating through this stuff (I tend to wonder about covid being an aggravating factor but I had anemia AND raynauds before COVID was born).
Maybe the progression of illness is from covid. A lot of people are suddenly ill and dying.
Mom got a Parkinson’s diagnosis AFTER covid.
SUCKS! We are together but we are broken…
Keep advocating for yourself. They didn’t have portal medical record keeping when I got started or I might have made some different lifestyle changes years ago (or at least known I should and specifically what those options WERE.