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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
Thank you Liz. Bare with me a few more questions. I wonder how you could have taken the Cipro if you have kidney issues? I know about the serious tendon issue but thought it was especially risky for kidneys. Did you have kidney issues when they prescribed it? Did you last the 10 days? Did it work for the Pseudo? Hearing that a Dr told you the urine issue at night has to do with blood flow is helpful. Was that the Cardiologist? A urologist, endocrinologist, GP, pulmonologist could not give me an answer on why. I never go during the day at all until around 6 pm but additionally I get the reduced urine output when I take many things such as remedies or supplements. The azithro is probably keeping things at bay for you along with saline. I am surprised you can take the azithro. I took only 1 and had some scary heart rhythm reactions so i never took another. What is GPN? What vaccine are you referring to? most likely it was the pneumonia that caused it and why it resolved. Thanks for your patience.
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As I remember it, they reduced the Cipro dose by 1/2 so it wouldn't build up too much..and hurt kidneys. It had no effect on my kidney numbers but this was in 2015 or so. I only had light pseudomonas at that time following a bronchoscopy. I lasted the 10 days but somehow the pseduomonas got worse and colonized over time (don't know how long though). It was the kidney dr. (nephrologist) who told me about the blood flow and night time urine. Did you have prolonged Q T time with the Azithro? That's the reaction I've heard about but my cardiologist said it wouldn't be a problem in my situation he didn't think. Also I am on a 1/2 dose - 250 mg. and only 3 days a week. So far EKG is fine. GPA is called also Wegeners...it is what did in my kidneys - my body attacked them. It is a kind of vasculitis. The vaccine was the Covid vax he meant (I had like 4-5 doses), Myocarditis can be caused by the covid vax or covid or other things so not clear to anyone at this point. I am being checked again in a few months. Ask all you want! I don't mind. The whole subject is interesting.