Small Fiber Neuropathy

Posted by wjones159 @wjones159, May 26, 2018

Good morning,

I have been diagnosed with SFN, and was a bit alarmed at my biopsy results. I have read over a lot of the symptoms and discussions others posted, and did not want to be overly redundant, so in the interest of keeping this post marginally analytical, I was hoping you could give me an idea of the severity of the results.

The lab states that low density is in the range of 6.2-6.8 for the thigh. My observed density was 0.07. For the calf the low range was 4.8-5.4 and my observed was 0.67.

Those numbers seem extremely poor and depressing. Is it as bad as the numbers would seem?

Thanks for any thought you can provide
-Scott

Interested in more discussions like this? Go to the Neuropathy Support Group.

jchet | @jchet | Aug 28, 2023

In reply to @budjo611 "Correct!! It is with Dr. Oaklander. I’ve listened to some YouTube lectures. It’s like she’s describing..." + (show)

Oh, lucky you! Please, please let me know what she says (if you don’t mind). I hope I don’t miss your post in Jan. 👍🍀

budjo611 | @budjo611 | Aug 28, 2023

In reply to @jchet "Oh, lucky you! Please, please let me know what she says (if you don’t mind). I..." + (show)

No worries. I’ll get it out there. A little luck maybe. But I pushed hard and persevered!!!!
Sometimes the best advocate for yourself, IS YOURSELF.

jchet | @jchet | Aug 29, 2023

In reply to @budjo611 "No worries. I’ll get it out there. A little luck maybe. But I pushed hard and..." + (show)

I couldn’t agree with you more. Just curious…..where do you live? I am here in Baldwinsville, N.Y. (Near Syracuse, N.Y.)

budjo611 | @budjo611 | Aug 29, 2023

Oddly, I read an article about SFN from an Arizona pharmacist whose husband has SFN. She did a lot of research and described in detail what he was going through. It was very informative and a spot on description of symptoms. She recommended Dr. Oaklander in her article. I live just north of Boston, so it seemed like I finally got a lucky break. Jumped through a few hoops and managed an appointment. A long wait!!!! Hope it’s worthwhile.
Google Suzy Cohen and SFN. It’s an excellent article. I found it by chance while doing my own research. There’s also a link to a lecture from Dr. Oaklander at Vanderbilt. That’s when I knew I had to have a consult with her.