← Return to Have Bronchiectasis, recently diagnosed with pseudomonas

Discussion
Comment receiving replies
@liz440

Yes Meropenen IV 2 weeks. I was in the hosp the whole time because I had double pneumonia and heart failure (Myocarditis caused heart failure - got better and returned to normal ejection fraction for left ventricle in about 4-6 months). Yes they decided the Merem (short for Meropenen sp?) was the safest. No Tobi inhalation either they said. My kidney function was checked daily for 2 weeks in hospital then after the end of the treatment 2 weeks later and then a month later and all kidney function numbers stayed around the same with minor usual fluctuations. Cipro was not an option because in the past I had tendon inflammation in my wrist (couldn't use laptop touch pad with right hand) and achilles tendon while on a 10 day course of Cipro (also I am on prednisone low dose for autoimmune issues and that makes Cipro more dangerous re Achilles tendon). I think the urine issue has to do with blood flow and my doctor said it's not unusual to go more at night when you are in the prone position for what that is worth. Yes I have felt much better after the treatment but it took a while due to the pneumonia and heart failure. Now (9-10 months later) I am almost back to normal feeling (still no muscles because exercise had to be put off due to heart failure issue) and have more energy despite the pseudomonas being colonized. I don't know what part the azithromycin is playing in all this but for sure the sodium chloride helped a lot also with my sinuses. Have not had one sinus headache since I started (knock on wood!) It's very hot here so I haven't tried walking outside much but in the house I can do a very fast six minute walk test which I do daily or almost daily to check on myself. (100 steps a minute). It was all quite scary. The cardiologist wanted to implant a defibrillator but luckily my echo cardiogram showed my heart was back to normal. No idea what caused the myocarditis - pneumonia infection, an autoimmune disease I have (GPA) or the vaccine per the cardiologist...a "mystery".

Jump to this post


Replies to "Yes Meropenen IV 2 weeks. I was in the hosp the whole time because I had..."

Thank you Liz. Bare with me a few more questions. I wonder how you could have taken the Cipro if you have kidney issues? I know about the serious tendon issue but thought it was especially risky for kidneys. Did you have kidney issues when they prescribed it? Did you last the 10 days? Did it work for the Pseudo? Hearing that a Dr told you the urine issue at night has to do with blood flow is helpful. Was that the Cardiologist? A urologist, endocrinologist, GP, pulmonologist could not give me an answer on why. I never go during the day at all until around 6 pm but additionally I get the reduced urine output when I take many things such as remedies or supplements. The azithro is probably keeping things at bay for you along with saline. I am surprised you can take the azithro. I took only 1 and had some scary heart rhythm reactions so i never took another. What is GPN? What vaccine are you referring to? most likely it was the pneumonia that caused it and why it resolved. Thanks for your patience.