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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 19 1:42pm | Replies (179)Comment receiving replies
Excuse the humor but I cried, yelled, moaned and generally behaved like a spoilt child. Then after a nice hug by my man I took a deep breath and made a cup of coffee then went back a step with my daily prednisone. After a month or two I tried again. If that didn't work I repeated and then it worked each time. Until they come out with a sure fire treatment I guess this is the way it goes, at lest for me. Right now I have dropped one quarter of a ml. to 1 1/4 ml daily This has been working to the point that I can't say I'm sure if my aches and stiffness are PMR rather or old age. I see my rheumatologist in December, sooner if I feel the need. I am hoping I will be off Prednisone by then, That will be the best Christmas present ever. It's been a long and hard journey but I have learnt a lot about living and about myself. I feel stronger and smarter now than I did four years ago. Keep on keeping on friends, Your light at the end of the tunnel is there, even if you can't quite see it yet.
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I am so happy for you. I hope you are prednisone free by Christmas. Please keep us in the loop. Cheers
A great big thank you for your contribution on this platform. I hope and I pray that you will never have to be on this drug again it works but done of the side effects are costly. I've only been on prednisolone since August 2023 but my mood swings have been hard for both myself and my husband. I am weaning now and just about to go on 2 mg for two weeks then 1 mg the same then 1 mg alternate days for two weeks and finish. I can't wait. Hopefully I will be back to being myself.
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You sound as if you are winning. I played around with that last milligram for 6 weeks and then dropped it. The result I can live with. I have stiffness in my fingers until mid day, so it must still be the residuals of PMR. I have lingering weakness in my arms and legs, but there again, it could be the result of not enoough exercise and movement during the two years of coping with the pain of PMR. Either way, I am glad to have made it through and happy for you!