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Small Fiber Neuropathy

Neuropathy | Last Active: Nov 22 5:50am | Replies (106)

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@budjo611

Correct!! It is with Dr. Oaklander. I’ve listened to some YouTube lectures. It’s like she’s describing me!!!!! Spot on description of what I feel. Not sure she will be able to help me, but at least she already knows what I’m experiencing. It was difficult to explain my symptoms to past neurologists because my sensations were so hard to put into words. Sometimes I felt like they thought I was crazy. The third neurologist suggested the skin biopsy. It came back positive unfortunately. He seemed surprised!!!! He didn’t seem to know where to go from there. Just more pills!! I see Dr. Oaklander in January. It gives me some hope, if nothing else.

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Replies to "Correct!! It is with Dr. Oaklander. I’ve listened to some YouTube lectures. It’s like she’s describing..."

Please let us know how it goes with Dr. Oaklander. She is a well known specialist in SFN. Mine is idiopathic as well. It would be great if we can get the benefit of what she has to say (I know everyone is different). Good luck.

Oh, lucky you! Please, please let me know what she says (if you don’t mind). I hope I don’t miss your post in Jan. 👍🍀