Hello, dis224. The treatment at UTHSC in Tyler has been excellent. I have read so much about National Jewish Health in CO but have never been there. I believe that that facility is probably larger and very well funded. However, everyone from the nurses, pulmonary function techs, imaging staff, lab, and pharmacy has been exceptionally courteous and responsive. Dr. McShane focuses exclusively on bronchiectasis and MAC- either or and both. Her resume is impressive, but her personal manner and care of her patients is even more so. She listens and asks questions. She is empathetic, reassuring, and wise in her counsel. With all of her competency, there is not a trace of arrogance. My experience with the local pulmonology clinic was so poor, that I did not know what to expect with Tyler.
I felt despondent when I went and at the time knew only a fraction of what I know now. I had not yet heard of this wonderful support group. When I told the doctor in Tyler about my local experience and how they said they do not co-consult and that I would have to choose, she got a determined look on her face and looked me square in the eye. She said, Well, we will treat you here, and if what we do does not work, we will find something that does.”
It makes me cry when I think about it each time. The doctor is so in tune with her patients. Her nurse has so many years of experience. Her respiratory therapist is so patient and kind. I love the pharmacist in the building.
It is a long distance for you to travel from FL, but CO is farther. I think that any of the three will be good options for you because they have specialists in this disease. It then comes down to the staff’s approach to patients. I can only speak to my experience with Tyler. In my opinion, they are a model for patient care and compassion. This illness is so different from others and differs for each of us. The treatment is long, unpredictable, and not easy. We should expect and receive the care and compassion of our care providers, and only doctors who deal with this illness on a daily basis have the unique insight and knowledge to provide the best care. Sometimes the biggest places are not the best for all patients.
I hope that this helps you.
It helps so much! Thank you! I have much to consider but this definitely tells me that UTHSC is a significant consideration.
Bedside manner is of utmost importance especially with such a complicated disease and so many unknowns it seems for the average person getting this diagnosis!
Appreciate the info and your time and this wonderful support forum! So happy I found it! Have a great day!