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Living with inoperable pancreatic cancer

Pancreatic Cancer | Last Active: Sep 12, 2023 | Replies (43)

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@ajh5285

Thank you for the additional information about your journey.
I do have one question related to your comment that your "body is still recovering" from the Chemotherapy you've received. How long do you think that has been now?
My husband does believe that the further out I'm getting from my last Chemo Infusion, the better I'm getting. I found the liposomal irinotecan intolerable and that had to be stopped since I sent my oncologist a midnight message that I didn't think I was going to make it through the night.

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Replies to "Thank you for the additional information about your journey. I do have one question related to..."

The first chemo treatment I received was in October 2022. These were the meds I was on: Leucovorin, Fluorouracil, Oxaliplatin & Irinotecan. I was told these meds affect the whole body, not just the cancer cells. I had low white & red blood cell counts many times, so they would put off treatment to let my bone marrow produce more blood cells. I finished that treatment in May because my cancer marker numbers were going up & my doctor didn't want me to have an allergic recation to one of the meds. I was surprised when I told the doctor I was feeling tired but he assured me that my body is recovering from the initial chemo. The treatment was for 6 1/2 hours, then went home with a chemo pump for about another 42 hours. At least with the g-a it's only 2 1/2 hours. I know others have treatments where they come several days a week. That's really sad. I think it's the bone marrow that must get hammered from some of the treatments. My chemo brain doesn't always think to ask more questions. I'm so thankful for my husband asking questions when he comes along. I have had a lot of side effects from my original chemo disappear, like the sensitivity to cold in mouth & hands. I still have some neuropathy in my feet & sometimes in my hands. I remember when they would give me the anti nausea stuff, I would start feeling nauseous. Weird!! Those meds knocked me down but I was thankful I didn't have much nausea or diarrhea, just constipation, so fiber is my friend! So sad you can't enjoy kiwi. It is interesting how chemo affects each person differently, but that's what makes us unique. Take care!