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Living with inoperable pancreatic cancer

Pancreatic Cancer | Last Active: Sep 12, 2023 | Replies (43)

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@199

I too am a Catholic. However, some of the current stuff the "Church" gets into is a bit political & sometimes contradictory to its old teachings so I do wonder what is going on but I still believe in the basics of the Nicene Creed.
My cancer started out in the tail and exited somehow to the adrenal gland and lungs. I am blessed that some of the nodules are shrinking and will be getting another CT in September. I am on "palliative care" which I did not understand at first and assumed that I was being given up on until I read about the newer definition of palliative care. I have to say that I have not had bad issues with food/nutrition.
My oncologist did mention that I would be on some form of chemo for the rest of my life. What did your oncologist consider a complete course of of g-a? I will be getting my 36th tx this week. Why not try something else? I really want to get my doses adjusted since I am having more side effects, but I am almost afraid to change anything even though I am getting much more "winded" and less energy. Hopefully we can address this at our next appointment on 9/7.

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Replies to "I too am a Catholic. However, some of the current stuff the "Church" gets into is..."

I'm also on gemzar & abraxane, I started getting it every 2 weeks but it got changed to every 3 weeks. My bloodwork always seemed to be low the 2nd week after treatment. I guess I will see if this is okay. After my 2nd dose, I had the side effects hit me 3 days after treatment. I had joint & muscle aches, a low grade fever up to 101 & felt so wiped out. I found taking Tyenol did help with my side effects. I'm also trying to keep drinking more to flush the g-a out of my system after treatment. I can relate to feeling winded & less energy. I just don't have the strength or stamina that I used to. I will try to get some things done in the morning but by early afternoon, some days, I can barely keep my eyes open, so I go take a nap. My dr. tells me this is from the chemo I was on earlier and my body is still recovering. Good to hear you are having some positive results. Take care.