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I feel lost: We don’t have a diagnosis yet

Caregivers: Dementia | Last Active: Sep 2, 2023 | Replies (23)

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@bobbisedlmayr

As I read your post I saw my husband and myself in some of your descriptions. My husband was diagnosed with lewy body dementia. He had the lumber puncture test which told us definitively what the diagnosis was. My husband is angry. He is on zoloft to help with his moods. He sometimes quits because he read not good
for you. Then I have to get him started up again. He also tells me it is my fault the neurologist said he had to have a drivers test and one every 6 months because of his disease progressing. It my fault for alot of things in his mind. I feel for you and hope you are able to take care of yourself.

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Replies to "As I read your post I saw my husband and myself in some of your descriptions...."

bobbisedmayr - Thank you for your input. Anger, yep. Some days all day. I even have a song about that anger that I sing in my mind. It goes like this: Oh, It's anger in the morning, anger in the evening, anger at suppertime, he's so angry, angry...... just angry all the time. I sang it to him one day and he stopped dead still and looked at me. Are you talking about me, he asked. My one word response - Yep. The anger toned down for a little bit, but it's back. (I might try for a repeat performance next time he's over the top angry.)

I'm right there with you on everything is my fault. Of course everything is our fault's, that way they can pretend that they're perfect. They do know something is off and they do NOT want to claim it. I do have my husband on a good regimen of vitamins and supplements including Ashwagandha, which I also take. Look into that one if your not taking something to help yourself. A friend told me about it. I researched it and liked what I found. What I can remember from when I was researching it was that it's old as the hills, helps with energy production, immune support and mood and stress management. I can use all of the one's mentioned. I don't know what this zoloft is that you mention, but I'll look it up. I'm guessing that it's a prescription drug? We don't have a lot of experience with those.

As you know, taking care of ourselves can be a struggle....where's the time? My favorite tool for getting my frustrations out of my system is walking the treadmill. I can do that and still keep an ear on what my husband is up to. An added bonus is that he typically wants it after I'm done. Monkey see, monkey do. That doesn't sound exactly right, but it is so true these days. You and I are leading, we've taken over pretty much everything. Husband's are here and can help with simple tasks, just don't expect them to manage anything too complicated, correct?

Thank you for the well wishes, I hope you are going to have a good day today!