← Return to Small Fiber Neuropathy

Discussion

Small Fiber Neuropathy

Neuropathy | Last Active: Aug 30, 2023 | Replies (105)

Comment receiving replies
@jchet

Please let us know how you make out with the Mass General hospital. I’m wondering if it’s with Dr. Anne Oaklander.

Jump to this post


Replies to "Please let us know how you make out with the Mass General hospital. I’m wondering if..."

Correct!! It is with Dr. Oaklander. I’ve listened to some YouTube lectures. It’s like she’s describing me!!!!! Spot on description of what I feel. Not sure she will be able to help me, but at least she already knows what I’m experiencing. It was difficult to explain my symptoms to past neurologists because my sensations were so hard to put into words. Sometimes I felt like they thought I was crazy. The third neurologist suggested the skin biopsy. It came back positive unfortunately. He seemed surprised!!!! He didn’t seem to know where to go from there. Just more pills!! I see Dr. Oaklander in January. It gives me some hope, if nothing else.