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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)
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@healthybon

Hi Sue. I have been on Ethambutol and ariththromycin one month. By the fourth week I started getting horrible tinnitus and intestinal blow out. Gas. Gurgling. Sick as a dog. I’m not continuing the meds. Can’t hack them.

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Replies to "Hi Sue. I have been on Ethambutol and ariththromycin one month. By the fourth week I..."
Sue, Volunteer Mentor | @sueinmn | Aug 27, 2023

Please...tell your doctor. I felt the dame way at 4, 8 and 12 weeks, and spent time on the phone with my pulmonologist's staff figuring out alternative times, and way to make it work.
There are ways to manage the grastrointestinal effects.
The meds take more time to work, and given how reluctant you were to start them, I am sure the doc would not have been so insistent if there is not a good reason. I managed 18 months before stopping, long enough to kill most but not all of the MAC. Now I have been able to manage with saline & airway clearance.
Sue

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