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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@angievaz29

Hello, I’m Angela I had my first ileostomy inlay 15 because I have familia adenomatous polyposis (fap) at first I struggle with it I got depressed and wanted to be anti social but I was able to get a reversal done and in 2019 I had to get my second ileostomy because I was struggling with obstruction and they couldn’t exactly find out what was causing them but I was more confident happy it brought joy to my life now that I’m thinking about honestly I would go to the beach everywhere I was always showing it off I wore non transparent bags and I had it for 9 months and I ended up getting an obstruction and had to have a reversal again and last month I ended up going to the hospital because I thought I had an obstruction when I actually had a necrotic j-pouch so they had to remove my pouch and now Im 23 with a permanent ileostomy and I’ve adapted and I can’t complain it saved my life. It was either get an ileostomy or lose my life because of how severe it was I go back to work next week I’m kinda nervous and scared for some reason but I know I got this my stoma is pretty healthy and scars are healing good at time my skin feels tender whenever it’s time to change my bag I always shower without it on the day I need to replace it so my stoma can get some fresh air too but I’m definitely looking forward to the future. The only thing that I’m at a conflict about is having kids because I want them but at the same time I don’t because I would hate for my child to go through what I went/currently going through

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Replies to "Hello, I’m Angela I had my first ileostomy inlay 15 because I have familia adenomatous polyposis..."

@angievaz29, you've been through a lot. It sounds like you've faced many different emotions and have arrived at a point of acceptance and embracing life. Have you been able to connect with anyone else in your age group who lives with an ostomy?

I hope you're enjoying the long weekend. How is the return to work going?