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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 18 8:57pm | Replies (402)
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@timt347

Lori,

I had a BMT in 2020 to treat AML. In an attempt to be helpful to other people, I wrote an account of my experiences, with a focus on lessons learned. If anyone asks, I can probably find a way to make a PDF file of it available online, although I might need some suggestions about how to do that.

When I started treatment I was within 8 days of my white blood cells reaching a fatal level. I am still alive 3.5 years later, so I might have done something right. The Appendix contains a list of lessons learned. Here is the short version:
Reach out to everyone you know for help.
Do what your doctor wants you to do.
Hang on to hope.

I hope this helps. If you have questions I can try to answer them.

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Replies to "Lori, I had a BMT in 2020 to treat AML. In an attempt to be helpful..."
Lori, Volunteer Mentor | @loribmt | Aug 27, 2023

Hi @tim347. Your story with AML echos mine. We’ve gone through quite an arduous journey to get where we are today. I read that you had a relapse so I’m relieved to hear that you’re doing well on the meds you’re taking.

Thank you for sharing about your PDF file of your journey. I also don’t know how to post that but will check into it.
In the meantime please feel free to keep jumping into these conversations as the questions arise! It’s so important for those of us who have overcome and endured these experiences to become someone else’s survival guide. ☺️

I’m so happy you found our forum where you can share your story. If interested feel free to jump into these conversations!

~Chronic GVHD ~ Let’s talk about it!
https://connect.mayoclinic.org/discussion/chronic-gvhd-lets-talk-about-it/

~Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

Do you have any chronic GVHD?

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