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Living with inoperable pancreatic cancer

Pancreatic Cancer | Last Active: Sep 12, 2023 | Replies (43)

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@margefromwi

I found out I had mucinous pancreatic cancer in October 2022. Fortunately, my cancer was found early. I have a tumor in the tail & 2 lesions on my liver. I was told it is stage IV because it's on the liver & 2 years prior I had surgery to remove a 4 pound ovarian cyst that had cancer cells in it & both ovaries had cancer. I can't have surgery to remove the pancreas because the cancer cells have already been spreading around. I have had chemo since October. I was told there aren't alot of treatment options for this type of cancer. I had been working only 2 mornings a week during my treatments but in April I deceided to retire. I'm feeling good & want to do what I want as long as I can. I realized, we don't know what the future holds. I have been feeling positive most of the time but it is frustrating when your body is just tired out. I'm learning to listen to my body & take naps. I can appreciate the feeling of helplessness & having no control because we can't eat, drink, exercise or anything that will absolutely help cure this. I was told my cancer isn't curable, but could be managed. I have met many people that have had chemo & then they were done & cured. I was feeling frustrated because so many were cured & I won't be. The chemo room is my home away from home & the staff is wonderful! I get a reality check that I don't have it that bad, I see someone else have it worse than me. I find a lot of comfort from praying & seeing how God made circumstances that were beneficial for me. I'm reading books, baking, going through stuff & doing a lot of craft projects now that I have put off for years & it keeps my mind off the cancer. It sounds like I'm overdoing it but I don't know how long my eyes, hands & brain will allow me to keep doing all this. I'm living my life as if I didn't have cancer by doing things I've put off because I will do it later or I couldn't take off of work. Last month my family & I went to Germanfest. We went to a Milwaukee Brewers game last night. Next month we hope to take an Upper Dells ride & go to an Indian Powwow. I'm trying to live each day to the fullest, which sounds cliche but I should have been doing it sooner. Stress is hard on the body, try to do or find something that relaxes you. I saw a video of a song, "It's OK" written & sung by the performer, Nightbyrd on a TV talent show. It's sad but it's very moving & we can relate. Take care.

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Replies to "I found out I had mucinous pancreatic cancer in October 2022. Fortunately, my cancer was found..."

Admire your courage so much. Did you have any genetic testing? The BRCA 1/2 gene predisposes to both ovarian and pancreatic cancer. There are some treatments which are beneficial for people with BRCA1/2.