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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: 9 hours ago | Replies (45)Comment receiving replies
I have been on chemo for 2 years with this diagnosis. The targeted therapy that was found called Pemazyre has been the most effective. I find strength in my faith w/God and try keeping a good attitude. I have stents and due to a grandchild rough housing had to get an external bile duct drain that is now capped and they are waiting 5 weeks to be sure everything ok. I’ve gotten on FB and found hugely proactive cholangiocarcinoma groups I recommend you hop on.
Replies to "I have been on chemo for 2 years with this diagnosis. The targeted therapy that was..."
I also dealing with Bile duct,also affected the liver. I just had a Y90 radiation treatment,supposedly takes a few months to see results,was a 10% and artery open,the radiologist wants to do another treatment Y90 with chemo. I'm waiting a while to decide. However I been taking tibsovo cancer pills for one year,they are great
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Thank you for the recommendation. I have Facebook- I will join. I decided not to do the chemo now. I am starting the proton beam therapy- I have the initial mapping and imaging on Wednesday.