← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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@imzadi1971

I have never heard of DISH either until Wednesday (23rd) afternoon. That's when my primary doctor diagnosed me with it. He also said my back was riddled with arthritis as well. And he said there was no known cure for this. So this is why I've been having constant, every day headaches!
I've gone from being able to fully bend and twist my neck and back to not being able to do much of anything with it anymore. Turning my neck while driving is almost impossible, and don't even ask me to wipe myself dry between my legs after peeing, because I can't do it anymore. I just can't reach because I'm too stiff.

So now I have to go see a rheumatologist in Sioux Falls, SD, in October, because that's the soonest I can get in. In the meantime, I just take one Aleve pain pill for all-day, and two Advil liquigels right away if I need to, but they don't always help. I try to deal with the costant pain, but it's hard to do. I just wish I weren't in so much pain...

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Replies to "I have never heard of DISH either until Wednesday (23rd) afternoon. That's when my primary doctor..."

Well, I hope that your rheumatologist connects you with pain management like my rheumatologist did. Unfortunately, there are no medication’s that the rheumatologist could give me because I do not have an autoimmune conditions which his meds would work for. Hopefully he will make sure that you already have or will check via bloodwork to eliminate any auto immune issues. But pain management has been able to help me. Doesn’t completely eliminate pain, but it does help. I can’t take the ibuprofen, or naproxen very often because I start to take on extra fluid. Which is not good for me. Most people it does not bother, so I am in a very small minority For that happening.
I do hope that you find some answers that will help what you are going through. It is probably going to be a combination of things, including medication’s, exercise, physical therapy, and I also do massage therapy.. I wish you well with your new diagnosis. 🙏