What a tumultuous time you’re all going through right now. I wish you well with your own health condition. Boy, things can never just be simple, can they?!
Your son will have changes ahead but he should progress nicely and eventually get past this critical stage. Hopefully life will have an upswing for all of you. If your husband has any questions about caregiving and needs support we’re all here to offer encouragement and guidance for him as well. Think of us as an extended family. We’re here to give to hope. Sending a virtual hug.

Hi! I have been blessed with 10 years of survivorship after transplant for an aggressive AML. In reading your notes about your son, it brings back many memories. The side effects are tough, but it sounds like your son it pretty tough too. I can sense your distress about him being in the hospital alone, but as a former ICU nurse, I can assure you he will get VIP care. Nurses always do a little something extra to bring comfort to the patient who doesn’t always have family present. And I am sure he wants you and your husband to stay healthy and strong too.
I learned a lot during my treatment/recovery and what is really important in life. Family is everything and what a blessing he has in you. Please know I will keep all of you in thought and prayer. I am sending you the rainbow I photographed this morning.
KMZ

I agree with Lori - post-transplant time is brutal! Going into my transplant I thought everything would heal quickly. In reality, I had a lot of complications during that first year. One encouraging thing one of my doctors said was 5 months after my transplant. I was in the middle of severe upper and lower GI GVHD and was totally debilitated by high dosage of prednisone. My husband was pushing my wheelchair into the doctor’s office. The doctor said: “You are at your lowest point right now, but your gut is in the process of healing. Now, we have to get you out of this wheelchair, or you will continue losing muscles.” I came home and forced myself to start walking around my living room 3-5 minutes at a time. Before I knew it, I was walking for an hour each day. My doctor’s gentle push paid off - I work full-time, walk 4 miles each day and enjoy my life to the fullest. It’s a journey, we take one step at a time, and it’s important to keep going forward!

Hello @leilab1. Just thinking about you today and hoping things are improving with your son’s condtion after transplant. We moms never stop worrying. Sending you a warm hug.