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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: 1 day ago | Replies (239)Comment receiving replies
I have had Raynaud's for over 60 years. Started out with just a little annoyance, and is quite a challenge now. I was told I should watch it very closely , because it was possible for it to cause Frost Bite. Keep the gloves and hand warmers close. I was told this was caused by the sympathic nerve. Tends to get worse over time.
Gina5009
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Hi Gina,
I understand what Raynaud’s feels like and have had episodes off and on starting about 30 or more years ago.
There are times when I have episodes that begin after brief exposures to cold, handling ice or frozen foods in the freezer.
I’ve had episodes for no apparent reason, one or more fingers turning white, numb yet very painful. Heat seems to help most time. I think there is an emotional component that stress could be a factor, but many times it come on for no apparent reason.
I also have intermittent numbness in my feet mostly at bedtime.
All my experience with complaining to doctors seems to fall on deaf ears with the usual “ you have Raynauds” as though that’s it, followed with avoid the cold.
I haven’t met a doctor suffering with Raynaud’s themselves they might be more sympathetic if they were..
I can only offer you my sympathy as a fellow sufferer, and wish you the best.
Jilly