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@laja

I too am a long covid survivor. Although I use that term loosely. I have been to TEAMS of docs at THEE Cleveland Clinic and the only help I seem to be getting from the sozen doctors I see, is from the FUNCTIONAL MEDICINE Dr's. They believe my crazy symptoms post covid Sept 2022, are from MAST CELL ACTIVATION that has not turned off since my Covid in Sept 2022. I have vibratory feelings in me chest or abdomen as well as my legs. It feels like a cell phone on vibe. My skin on the back of my arms often feels like its got sunburn despite no sunburn being there. My head feels foggy on and off and also feels vibratory at times. My teeth even sometimes mildly klank because of jaw spasm but the dentist said its not TMJ. I HAD tremors that were unbelievable and had a spinal tap and brain and spinal MRI's to rule out M.S and Parkinsons and ALS. The tremors are less pronounced but they persist daily. My rib cage constantly feels like its being squeezed and the skin burns there too. I've had scans and blood tests beyond belief and the ONLY blood test that came back abnormal was my TRYPTASE BLOOD tests .I've had SIX of those tests to see if there is a patterns and all of the, were just over the norm by a point or two. I am on mast cell stabilizers and second generation antihistamines (ie...zyrtec, xyzal) and H2 blockers like Famotidine or Pepcid. The mast cell stabilizer meds must be prescribed by a physician ( Ketotifen, Cromolyn, Singulair) although there are weaker mast cell stabilizers in OTC supplements but these too need to be discussed with your physician since they CAN interact with MANY other medications or physical conditions. I just turned 60 years old and was quite an athlete. Always had an athletic build and incredible stamina. Now I can barely stand long enough to shower. It's been 10 months of misery and don't know if any of the meds I am on are helping. I am told I need to give the meds three months. In one more month it will be three months. I AM ALSO being tested for mold toxicity because Covid can bring out many conditions that we were able to deal with prior to getting covid. Covid brings out a lot of problems and screws up your immune system badly. Any one else ever hear of all these crazy symptoms?

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Replies to "I too am a long covid survivor. Although I use that term loosely. I have been..."

@laja,
Wow, can I relate - we are like twins in our symptoms! My rib cage and stomach feels like I'm being squeezed by a Cobra snake. I've been suffering with same symptoms now for 3 yrs!

In addition to the above, I developed a chalazion below my lower lash line and phetheris and I never had issues with my eyes. The chalazion became infected after Dr did a steriod shot. That resulted in two surgeries to lance it and get the pus out, all to no avail and chalazion is still there 1 yr later. Just recently my throat started to hurt, went to walk-in clinic fearing Covid or strep, again which luckily tested negative. 1 week ago, I now have a sore red area in back of my throat with a white/creamy colored spot in center, hurts to swallow. I'm thinking possibly EBV, etc.
Again, never had any of these issues prior. Also now developed a groin hernia which requires surgery I can't get because my weight is now down to 90 lbs.

Blood work now shows low B-12, ferritin and zinc - hello Covid! I was told I need a B-12 injection and iron infusion. Infusion was worst mistake every! I had such a severe reaction and my feet turned bright red/blue-ish in color and were very painful with pins & needles senstions. It was the worst experience every. They had to give me strong antihistamine. Worst yet, they want me to come back and continue with the infusions!

As an FYI, save yourself some $$$. I did the same and tested for mold toxicity and it tested fine. If anything, I would focus on the gut for fungus, etc. My stomach is in so much pain and I can no longer even it the foods I always ate and loved. I had an endoscopy due to the extreme weight loss and it showed mild inflammation in lining of stomach. Never had this pre-covid and I know I wouldn't have it now if I never got Covid, twice.

Like you, I was so very health and active and enjoyed running, walking, hiking, yoga, working in my yard and lovin' my job so much. I can barely function and survive now.

I'm going to send you PM - please watch for it.
Your right, Covid messed with our very healthy immune system and is attacking our body in ways we can't imagine.