Connect
← Return to Is there anyone that had estrogen positive cancer, without use of AI?
Discussion
Is there anyone that had estrogen positive cancer, without use of AI?
Breast Cancer | Last Active: Dec 15, 2023 | Replies (146)Comment receiving replies
Hi! Sure hope your recent appt went well and that you have a plan! I am on Letrozole since Feb for ILC. My onco waits a full year before a diagnostic mammo and with my dense breasts hoping she will add an MRI - may I ask how your metastasis was discovered? Early detection is all we have and I do hope liquid biopsies become more available to us. Good luck xoxox
Replies to "Hi! Sure hope your recent appt went well and that you have a plan! I am..."
I was diagnosed with ILC about 1 1/2 months ago. 6 days ago I had the tumor removed and 4 lymph nodes. The surgeon told my husband all looked clean. I have no idea what will happen next. I wait for the tumor board to decide. During an appointment I was told I would have mamogram followup 1 year and MRI the next. This concerns me because I either read or was told that ILC is hard to diagnose with a mamogram. Mine was diagnosed when calcification/distortions were seen on the right breast and an MRI was ordered. During the MRI, they saw the distortions on the left breast which was confirmed to be cancer with another test--a Mamogram w/contrast. I'm worried about only having mamograms since I was told they normally only see larger ILC tumors. I'm going to ask for the Oncotype test. I feel it will make my journey less stressful. 2 years ago I was diagnosed with a very rare ocular malignant melanoma. (If you ever hear anyone say they are seeing flashes of light they need to be seen by a retina specialist) prior to surgery I was offered a molecular genetic test which gave me an indication of it's chance of spreading. And also helped with followup decisions. I was a 1a out of 1-2. Meaning I was fortunate enough to have a 2-10% chance of metastasis vs a 2 which is a 70%. I now have yearly tests (CT, Pet or something similar) vs 3-6 months for someone with a score of 2. If the Oncotype test can give me the same mental peace/relief or the chance to have more testing if necessary, I want it.
Connect
I have lupus as well so I had not been to the oncologist till July 7th of this year since I had completed my initial treatment in 2016 due to my symptoms increasing in pain. Initially I assumed it was lupus. In retrospect I was starting to feel worse over the past several months and should have checked sooner. My tolerance for pain is high so I need to listen better to my body. News is I finally got approved for the Verzenio which I should get by mail tomorrow. I start radiation treatment next week hopefully! Hopeful the treatment can control the bone cancer .