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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
I am Swiss, born in 1939 and have been diagnosed idiopathic polyneuropathy some 13 years ago, the illness progressed slowly so that i now have regular chronic pain which can move from 2 to 9 out of 10 at certain times such as after a sleep change horizontal to vertical. Only cold - warm baths of feet and leggs can influence it positively although I am on a daily medication of 400mg Palexia retard (an opioid), 350mg of Lyrica and 900mg of Gabapentin. I do not like this quantity of chemistry having to pass through my system, I guess my liver does not like it either. Only under certain circumstsances and by medical
prescription can we obtain the new medication based on Marihuana, I wonder what could help such attacks, it is like a flame is passing through the feet into the leggs and back with burning and itching pain. It may stay with me for a few hours or go away within 30min - 1h. The bilateral knee arthrosis does not help to make my walking any better, I have been using a walking stick in particular when taking my doggie for a walk. Cold is my biggest enemy so that I have created all sort of socks out of thermal leggins or similar material covering parts or the leggs or all of it, thicker or tinner, depending of the season.
My neurologists never have an idea how to fight my chronic peripheral nerve pain, Lyrica seems to be the state of the art and all kind of other trials
did not show any improvement other than Opioids which I would like to avoid and slowly move out of it. For that I will go back to a hospital in order to check what could be reduced first and in what relationship to the rest. Anyhow is is frustruating and I wonder if anyone has some new idea, I am also read anytime to answer questions you may have by mail. felix
Replies to "I am Swiss, born in 1939 and have been diagnosed idiopathic polyneuropathy some 13 years ago,..."
do you have a list of pain reducing medications used in the USA mainly for pain in idiopathic polyneuropathy? I would like to compare this with the most common medicine in Switzerland (Gabapentin, Pregabalin) they do not really work on me. With opioides I have some releave but I hate to depend on it for much longer.
I had some type of neuropathy from 2006-2008; not much help from Medical University Center(nerve tests), / much depends on quality of neurologist. Tried Turmeric , food medicine based on chemistry/science; helpful. Along with start of spiritual support friends in Philippines, symptoms passed , short of going to Mayo. There is much in food research as medicine, the science is there even though many food suppliers are short of science based insights. JIM> Now lately, over a year dizziness; again the neurological maize, to define the symptoms to the right medical words, half the battle, and then get back into the food research and always rely on my spiritual support friends in the Philippines. Good Luck. JIM>>>>
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A joint study by the University of MN (USA) and Realife (Brooklyn Park, MN) was published in a peer reviewed journal a couple of months ago which indicates Laser IV had a positive effect on a large percent of the participants. I believe it was a 3 year study. The bad parts are that the treatments are currently not paid for by insurance, there are only a few locations that use the Laser IV, and the treatment is still a long way off from being accepted as a protocol. I suspect it will need to go through the Level I, II, and III clinical trials before then.
Of course, funding for these trials will probably be problematic as it is not a drug and the pharmacy industry has the deep pockets to fund clinical trials.
I have a reprint of the study (which of course is pretty technical), and I will seek approval to scan and post it on this and other peripheral neuropathy sites.