What happens when all lymph nodes are removed from left chest area?

Posted by wpglea @wpglea, Aug 24, 2023

After a left breast lumpectomy and ten lymph node removals, then a follow-up surgery for clear margins last year, I have recently been diagnosed with the same cancer. Although only two lymph nodes tested positive, eight were removed "as procedure". This time it is tumors on the lymph node incision. Now, the surgeon says he will remove the tumors, remainder of my breast, and all the lymph nodes... "as procedure", although none of the lymph nodes shows cancer. He warned me I will face lymphedema. Has anyone had all lymph nodes removed in left chest cavity arm pit?

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oh my goodness. That is so much to process. I am not in your position, but have you had a second opinion too?

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@wpglea oh my word, I am so sad to know you are going through this, but I am glad they have a plan for treatment for you.
There are so many discussions about mastectomies here it is hard to find any one to get the support you might need but I would encourage you read a few of those discussions (maybe just the last page or two) and connect with some of the other members who have had them.
Lymphadema is a consequence that many of us live with, my doctor said to minimize the risk. These were his recommendations, never let them IV or inject that arm, never them constrict or take blood pressure on that arm. Also to be aware of any injuries to that hand or arm.
How are doing now? Have the scheduled your surgery yet?

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I did not know about taking blood pressure or IV restrictions--thanks. No surgery date yet.

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Second opinion surgeon will remove the tumors and remainder of my breast, but leave the lymph nodes. He will scrape tissue from area near my heart "in case there might be cancer there", and he requires hospitalization and warned about needing blood.

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Hey there!

I had a right breast lumpectomy, and complete removal of all my lymph nodes in the arm pit and chest cavity.
Prior to the surgery my doctor performed a sentinel node biopsy. Tracer material revealed 2 positive nodes. My doctor opted to remove all my lymph nodes. Out of the 18 only two were positive. I was
Stage II ER+ . That was 17 years ago.
Lymphadema was minimal. My upper right arm & shoulder blade is still numb, but it hasn’t restricted any movement or activities.
Truth is, over the last 10 years or so, I haven’t given it any thought, and by the Grace of God, so far I have not had a reoccurrence.
All the best 🙏🏻

BTW.. check with your doctor, after a period of time, they no longer restrict blood draws on that arm.

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Kensiejames...more than you know...thank you

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I did not experience lymphedema after surgery or chemo. My lymphedema started after radiation therapy that included my underarm (where positive lymph nodes were removed during surgery) and radiation to base of neck. I knew this was a risk but I can live with lymphedema, not cancer. I have occupational therapy to learn massage and exercises to reduce swelling. I wear fantastic sleeves and gloves from Lymphedivas. I’m sorry you are on a difficult journey with difficult decisions. My experience has been mostly positive with compassionate health care and information from the brave warriors who visit this site. Try to stay positive, be proactive. Best wishes to you.

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Yes, I had a Radical Mastectomy and 14 lymph nodes removed 56 years ago. No swelling of the arm, and only recently some swelling of the hand. I use inexpensive compression gloves with the fingers out. I have full use of the arm, although it took a year of Rehab. Doctor told me to brush my hair. I should tell you, none of the lymph nodes were positive.
Gina5009

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@kensiejames

Hey there!

I had a right breast lumpectomy, and complete removal of all my lymph nodes in the arm pit and chest cavity.
Prior to the surgery my doctor performed a sentinel node biopsy. Tracer material revealed 2 positive nodes. My doctor opted to remove all my lymph nodes. Out of the 18 only two were positive. I was
Stage II ER+ . That was 17 years ago.
Lymphadema was minimal. My upper right arm & shoulder blade is still numb, but it hasn’t restricted any movement or activities.
Truth is, over the last 10 years or so, I haven’t given it any thought, and by the Grace of God, so far I have not had a reoccurrence.
All the best 🙏🏻

BTW.. check with your doctor, after a period of time, they no longer restrict blood draws on that arm.

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Update. Just had a blood draw today. I had my mastectomy 56 years ago. They would not take the draw from my left arm today because of the radical mastectomy and lymph node removal.
Gina 5009

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