← Return to Azithromycin Desensitization Need Opinions Please

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@healthybon

Hi Laura,
Thanks for your reply. I am taking Ethambutol..but I get my eyes checked by an opthomologist every 2 months, plus I do the color eye test at home as well. I keep a close "eye" on it.
As far as the Azithromycin is concerned, the ringing is tolerable...it's not super loud...so I am going to try to stick with it as Dr. Swenson feels its my only hope of knocking this damned disease down. Otherwise, it could progress into cavities and worse bronchiectasis (which currently is mild)....... He told me he has patients that use these two only and are successful. Once I progress then the third medication is required, and I know, without a doubt that I would not be able to tolerate it. It's kinda, your damned if you do, and you are damned if you don't. How long have you been off of the Azithromycin. Did the ringing start from it?

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Replies to "Hi Laura, Thanks for your reply. I am taking Ethambutol..but I get my eyes checked by..."

Hi Bon
I’m not sure whether this has been mentioned elsewhere, but has anyone suggested getting a test for the amount of azithromycin in your blood? I had high levels a couple of times and my bowels and other side effects seemed worse - improved slightly when levels lower.
I believe it is a specialized test that has to go to a lab in Florida- Dr Swenson would know