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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
The way I cope is to do my best to ignore the numbness. There is no relief. There is plenty of snake oil spread in the cancer community: baking soda cures, reiki, acupuncture, Chinese herbs, essential oils, homeopathy. Yes, they could work for some. Placebo effects are powerful. That's why the gold standard when testing if a treatment is safe *and* effective is a double blind clinical study where the treatment beats the placebo. I looked at the FB group and the protocol doesn't meet that standard. And no given the placebo effect "it worked for me" doesn't cut it, especially when you're telling people to wean themselves off their medications before starting.
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It's good to be skeptical but from your post I don't believe you actually read everything in the instructions which do not tell people to "wean" themselves off of the medications before starting. In fact it specifically says to not do it before you are on the full protocol and to work with your doctor if you have any questions. It works for me does cut it when the me is me. Granted it may not work for everyone but there are over 4000 members in the group and many that were bedridden and now have their life back and no longer have to take drugs that just mask the pain and come with their own set of problems.
There is no standard when it comes to peripheral neuropathy and if you think there is I would be interested in learning more as I have never seen one. Cymbalta, Lyrica and all the drugs that treat pain do it by masking the pain and do zero to address the problem that causes the pain - nerve damage. The longer you have the condition, the more the drugs cause additional problems and/or you keep having to up the dosage. So when left with a choice - drugs that mask the pain or a chance with something natural - minerals, vitamins, herbs and nutritional supplements that help your body heal on a cellular level, I will always keep an open mind to trying it.
The whole point of me sharing my story was to tell folks what works for me. Try it if you like, don't try it, but always do your own research and discuss it with your doctor. I am glad you are able to copy by ignoring the numbness. That's not an option for me as eventually the numbness aka nerve damage left to run it's course will get to where it affects the motor nervous system and the systems will get worse. Which is why my neurologist last words to me was let me know if it gets worse.
I wish you best of luck on your journey.
John