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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Replies to "My husband had Guilliane Barre Syndrome in 2013, he is now dealing with residuals. Hands, feet..."
I also have CIDP. It's been 3 years of ups and downs. I've been on Plasma Exchange until that stopped working. In July 2016 I ended up at Mayo/ St Mary as a quadriplegic and started a series of IVIG treatments. After 18 days there and rehab I walked out using a walker. I get 30g of IVIG weekly, 1200mg gabapenten 3 times a day, Cymbalta and Azathioprine. Today I can do most normal activities but I still have PN in my feet. I do take my time walking and try to watch where I'm going. My neurologist says the numb feet are a gift from CIDP.
Hi @gratefulone, @jazzy27 and @lindy1956.
I just tagged you in a discussion about CIDP where you'll meet others talking about this condition. Hope you'll join us there:
- Anyone been diagnosed with CIDP? http://mayocl.in/2m6rsMw
Hi Lindy, I too have been battling with residuals in the wake of gbs 2013. I have numb toes fingers knees & a band around my ribcage. Does hubby find that different weather, such as humidity effects the severity of these residuals?
I have CIDP, newly diagnosed, so i am not much help but curious if anyone knows what can help the numbness in feet. Tired of falling down due to not feeling things.