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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
My husband had Guilliane Barre Syndrome in 2013, he is now dealing with residuals. Hands, feet and belly pain are the worst. It seems we have tried everything but neuropathy in his feet is bad. Does anyone else have GBS or CIDP? We are always open to suggestions.
Replies to "My husband had Guilliane Barre Syndrome in 2013, he is now dealing with residuals. Hands, feet..."
I also have CIDP. It's been 3 years of ups and downs. I've been on Plasma Exchange until that stopped working. In July 2016 I ended up at Mayo/ St Mary as a quadriplegic and started a series of IVIG treatments. After 18 days there and rehab I walked out using a walker. I get 30g of IVIG weekly, 1200mg gabapenten 3 times a day, Cymbalta and Azathioprine. Today I can do most normal activities but I still have PN in my feet. I do take my time walking and try to watch where I'm going. My neurologist says the numb feet are a gift from CIDP.
Hi @gratefulone, @jazzy27 and @lindy1956.
I just tagged you in a discussion about CIDP where you'll meet others talking about this condition. Hope you'll join us there:
- Anyone been diagnosed with CIDP? http://mayocl.in/2m6rsMw
Hi Lindy, I too have been battling with residuals in the wake of gbs 2013. I have numb toes fingers knees & a band around my ribcage. Does hubby find that different weather, such as humidity effects the severity of these residuals?
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I have CIDP, newly diagnosed, so i am not much help but curious if anyone knows what can help the numbness in feet. Tired of falling down due to not feeling things.