Hello @leslie04, Welcome to Connect. It is a terrible feeling of being alone with a diagnosis and no one to talk to about the diagnosis and any treatments that may provide some relief. While many of us here have a different neuropathy diagnosis, I'm sure that you are not alone in your pain and balance issues due to sensory ganglionopathy. I don't have the pain with my small fiber peripheral neuropathy but I do have the numbness and balance issues. There are other members here who do have symptoms similar to yours with a different diagnosis.

I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. I think the best thing you can do is to learn as much as you can about your condition and any treatments or therapies that are available which may provide some relief. I think Sensory Ganglionopathy is also called Sensory Neuronopathy. Here are a couple of references to get you started while we wait for other members to respond and join your discussion.

--- Sensory Neuronopathy – Sensory Ganglionopathy:
https://www.news-medical.net/health/Sensory-Neuronopathy-Sensory-Ganglionopathy.aspx
--- Sensory Neuronopathies: https://www.semanticscholar.org/paper/Sensory-Neuronopathies-Crowell-Gwathmey/91ff951a4e663cd40f1996fd0c4d74ab4693fa17.

Have you tried using Google Scholar (https://scholar.google.com/) when you are looking for medical research?