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Anyone with CKD can give me answers or advise?

Kidney & Bladder | Last Active: Aug 27, 2023 | Replies (51)

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@kamama94

@sallylynn, glad your labs were ok. If you have nephropathy, seeing a nephrologist would be a good plan. I happen to know that as people grow older, mild nephropathy isn't all that unusual.

I'm also a diabetic so am used to the pins and needles of diabetic nerve damage but many kidney websites also say itching can have many causes, including too much or too little potassium or phosphorus in the bloodstream. I'm not a doctor, I'm just passing along what I have read or experienced.

I can relate to the burning itching especially, though, as I had shingles several years ago and still have burning itching where the shingles lesions were. I'm also convinced that the physiological trauma of the shingles contributed to my sudden eGFR decrease and the necessity for urgent dialysis. Fortunately, I've recovered somewhat and no longer need dialysis.

Am sending you positive vibes that your labs stay stable.

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Replies to "@sallylynn, glad your labs were ok. If you have nephropathy, seeing a nephrologist would be a..."

Thank you kamama. ~I agree with you, having a nephrologist would be good. I am sorry you had the shingles. I have read testimonies from patients who have it and it is horrendous. I must agree with you that your unfortunate bout with shingles more than likely played a part in your eGFR reduction. My youngest Son is type 1 diabetic. He was diagnosed at age 4. We almost lost him. He was in ICU for a week.I can not count how many times we had to call 911 because of his seizures, sad & bad memories. He is now 29. I am so happy you are no longer with dialysis. I as well send you positive vibes and you will continue to stay healthy.