Thanks for reaching out and sharing your story. It is always comforting to feel we are not alone in the struggle I totally get that most of the time the SCC is not at all life threatening if removed in a timely manner. However, I also had a friend who died from an aggressive SCCon the top of her head that attacked her brain.. One SCC I had removed by MOHS was also a very aggressive form and the doctor had to remove tissue all the way to my calf muscle to get it all - even though the lesion had only been visible a few weeks. His comment was that he had had patients who had worse results from this kind of SCC than from Melanoma (which I have also had). I am over 30 removals over the last two years - mostly on my lower legs, many of which have become infected. This last aggressive one required 3 different antibiotics before the infection finally relented. So I am VERY weary of this constant struggle even though I recognize that I am fortunate to have a very treatable challenge. Legs are just so slow to heal and so susceptible to infection. But I am doing everything I can to care for my wounds. And I am taking a thousand units of Nicotinamide ever day. I wrap my wounds in plastic when I shower. I am allergic to antibiotic creams, so I can use only Vaseline to soothe the wound site. I use a steroid cream to deal with my allergic reaction to the gauze, paper tape, etc. on the surrounding tissue. It’s been a true learning experience of what helps. Next week I get the next two MOHS procedures. Please send positive vibes that these may FINALLY be the last two - at least for awhile. We have a “trip of a lifetime” planned for November and I pray I can be wound free and have legs healthy enough for the challenge!

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