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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@hopeful33250

I so appreciate you sharing your story, @iverwig. It is helpful to others to know that often this type of cancer does not have the same look and feel as other cancers do.

How much longer will you be having the chemo? Will you be having follow up tests or scans in the near future?

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Replies to "I so appreciate you sharing your story, @iverwig. It is helpful to others to know that..."

I actually finished my chemo and radiation treatments and I had surgery to remove the rest of the mass that was in me. The surgeons had to plicate my right diaghram due to the cancer destroying it. I had part of right lung removed, reconstruction of my vena cava and open heart surgery. I also have a sternum lock in my chest due to the damage the radiation did to my rib cage.

In regards to the scans, I have scans done every 3 months. They were going to just continue to give me chemo but after discussing my case at a tumor board they decided to just go with the CT scans. I had a scan done last week and there was no signs of cancer however, they discovered some other issues which would explain some other complications I have been experiencing. One of the stents they put in me is blocked. I had been experiencing pain on my right side they couldn’t explain until my scan showed that one of the sternum lock staples apparently fell and is sitting in my side. They also saw that my right lung is not opening fully. I have an appointment with the thoracic surgeon in a couple weeks to discuss what was found on the scans and although it hasn’t been mentioned I suspect they will need to perform surgery again.