I can't relate. I'm so sad you have to ensure this double suffering. I experienced the disbelief, the disinterest, the questioning of motives and the annoyance prior to finding a PASC (long haul) doctor
COVID divided our country in so many ways. Mask vs no mask. Vaccine vs no vaccine, and ultimately, doctor vs patient. I feel we've lost the medical profession that once was. For the first time in my life, that I'm aware of, medical professionals are hurting many ppl in various ways. Certainly psychologically and emotionally. Unintentionaly. It's very sad. I see part of the problem as stemming from a heavy reliance on standard, basic blood tests + imaging instead of detailed direct patient evaluation thru dialog. New conditions don't show up in inapplicable blood work ups And, there is also a limited connection and familiarity with individual patients. Everything is now tech based. It's all about the EHR instead of the patient, imo.
I have no faith that my medical needs will be addressed in the future should I develop anything further or different that my current PCP doesn't treat. She limits her practice to PASC, cardiology and preventative medicine. Every referral she made (endocrinologist, neurologist etc) had a waiting time of 3-6 months - starting from after receiving medical records. And there was no choice of practitioner. But being treated as a hypochondriac, drug seeker, malingerer or mentally ill rather than physically ill person is truly damaging. It can be life threatened. It's certainly discouraging and depressing. The crosses many of us have to carry------if people could only see them!
Sorry for your circumstances and difficulties. Praying you find a compassionate knowledgeable doctor soon. Praying discouragement doesn't further burden you.