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DiscussionEssential tremors: any ideas on coping and managing tremors?
Brain & Nervous System | Last Active: Dec 26, 2023 | Replies (105)Comment receiving replies
Replies to "Does anyone know anything about MR-guided Focused Ultrasound (MRgFUS) for essential tremor? Weighing over risks and..."
Jenny51,
Thank you for sharing.
For 30 yrs took Neuronten/gabenpentin. A "new" drug (just like a "new" medical treatment) "Fantastic! This will definately eliminate that problem now. Jump in!"
Chronic Kidney Damage (stage 4 out of 5) - serious, long-term, chronic -
per neurontin/gabepenten.
"No side effects. People taken long-term, 10+ years. Dosing up to 10,000 mg a day with no side effects".
Kidney Damage - now I have (CKD) Chronic Kidney Damage - stage 4 (out of 5) - then that causes anemia and heart disease. I became anemic 3 yrs ago.
Like you: Very cauious. One side? Have to come back for another head shaving?
3 hours? - what are the procedures being done that take 3 hours?
Thalmus is very deep in the brain, in the center.
How does killing this area, leaving a lesion,
a dead area or a scar (scars grown) effect surroundiing tissue & organs, now & over time?
I also have had vertigo. I did not see vertigo mentioned.
Then I read side effects "gait disruption" and "advanced (?) kidney disease". NOOOOOO!
No way I'm risking that adding to what I have now.
Both Jenny51 & I would appreciate any of your sharing. Thanks.
Hello @jenny51. Welcome to Mayo Clinic Connect. You will see I've moved your post into an existing discussion on essential tremors so that others may join you if they, too have had interest or experience with the treatment you are considering, and I see that @marcia115 has joined you.
You can find your post here:
- Essential tremors: any ideas on coping and managing tremors?: https://connect.mayoclinic.org/discussion/essential-tremors-1/
Has this been recommended to you as a viable option for your tremors? What about it appeals to you?
jenny51/ I have essential tremor since I was 20, I am now 82, I looked into focused ultrasound, but they
still don't no how long it will last, some people say a year, they have to shave your hair in the place there working.
you can watch the operation on u-tube. I am sure there are side effects. They only do one hand, then you come back in so many months they do the other.
marcia115