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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@mfobrien36

Strangely enough, my leg cramps happen most often when I awaken in AM and do the in-bed stretch. This stretch seems to be a bit out of my control and while I can stop it, it seems to have a mind of its own -- this is when the cramps hit on the outside of my ankle and in my feet. I can't tolerate gabapentin but do take Vit B12 (oral supplement). Feet are most comfortable when cold (icy cold!). I notice when I don't drink enough water, the cramps are more severe. I have the type of PN where my feet are hyper-sensitive - feel everything - even bathmat causes discomfort. I've had this level of discomfort since chemo 6 years ago. It never improved but did get more severe. I've kind of divorced myself from traditional testing as it seems painful with no indication that the tests will result in help... so I take my tylenol, keep my feet cold, and alternate between swearing and praying.

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Replies to "Strangely enough, my leg cramps happen most often when I awaken in AM and do the..."

i see no relationship between cramps and NP.

Cramps are muscle problems due to mineral depletion (Potassium,Magnesium and Calcium)from dehydration.
Dehydration can be caused by medications, including diuretics,excessive exercise and other factors.

They are likely to occur when sitting or lying down for hours in one position. That seems how I get my thigh cramps, from being in bed.

You may not be able to see a relationship between cramps and NP but I know a lot of folks with NP (various/multiple diagnosis) that have leg cramping. There are lots of causes which can also explain why people with NP can get leg cramps.

I just read your article about your neuropathy and I find that I cannot wear closed shoes. Fortunately, I live in Florida, so I can be a sandals that have good support. That seems to help me.