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Anyone have cancer with unknown primary?

Cancer | Last Active: 1 day ago | Replies (129)

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@mikeh35

UPDATE: I had my zoom call today with my Dr. All scans are clear outside my liver. Many areas have been eliminated. My care is being transferred to the UW / Fred Hutch Center for Advanced Minimally Invasive Liver Oncologic Therapy (CAMILOT) This group specifically deals with GI cancers. My melonoma issue is now considered complete. We are slowly peeling the onion to get to the source and deal with whatever comes next on my journey.
I will keep posting updates as they happen.
I wish all of you in the same situation the best of luck.
Seek the best of care possible. Don't take the "easy" route or settle for less than the best. As an example, I am 47 miles away from a top 10 cancer research center, it takes 3 hours travel time each way. ( Yes, I have come to hate Seattle traffic) I have local cancer resources (20 minutes away) and that is where I started. I want treatment at a research facility that sees thousands of patients, not hundreds. Always be an advocate for your care, ask questions, seek advice and even second opinions.

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Replies to "UPDATE: I had my zoom call today with my Dr. All scans are clear outside my..."

Hello @mikeh35,

I so appreciate the update. You are wise to seek the best care possible even though you need to travel further as well as understanding the importance of advocating for yourself.

This is a journey, and it sounds like you are well on your way. I look forward to continuing to have updates.