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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@magg

Thanks for the info, John. I've read quite a bit on SFSN, and my symptoms are identical to everything I read on the disorder. I have no difficulty walking or moving around. Besides the gabapentin, I also take a number of supplements, including B12. That really helped the worst of the pins-and-needles and electric shock-like symptoms to dissipate when I had a flare-up a couple years ago. The only other issue I have is painful, sometimes disabling cramps in my feet and legs, mostly at night while at rest. But I think that might be a separate disorder from the neuropathy. I've heard from doctors that a lot of us "older folks" (I'm 67) have the problem, especially in the evening. It's pathetic that no one in the medical community can offer any help to the millions of people who have these problems. For me, the cramps are worse than the neuropathy. I've tried OTC creams and lotions, taking Hyland's pills, stretching exercises in the evening, massage, and even drinking pickle juice. Any other thoughts on how to combat the nighttime cramps?

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Replies to "Thanks for the info, John. I've read quite a bit on SFSN, and my symptoms are..."

I was experience cramps in my left foot, EVERY morning, at about 3:00am. Once it started, it wouldn't stop, even walking around & stretching wouldn't help. The minute I laid down again, the cramping started. Saw on YouTube a video about vinegar. I started doing 1 tablespoon of Bragg organic vinegar, in 4 oz of water & lemon, 3 times per day. I have not had a cramp since I started the vinegar, about 2 weeks ago. If you're at the stage where you will try anything, do this, but keep up your other OTC routines. Magnesium or mag oil is vital too. I usually take a swig of pickle juice at lunch too.

I also have cramp fasciculation syndrome, diagnosed by Mayo Clinic. I used quinine sulfate 324 mg caps prn for cramping until I discovered mountain bikers used a teaspoon of yellow mustard. Don’t know what ingredient does the trick, but it works for me and other family members with CFS.