← Return to My Experience with Neuropathic Therapy Center at Loma Linda University

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@juliabasa

Hey guys! Just thought I’d add my experience with INF here as well, in case anyone interested happens upon this.

To give you some background, I was diagnosed with bilateral TOS (all three) in Dec. 2020, and had a surgical decompression Jan. 2021 (I was 19yo at the time, and had been suffering for years with no diagnosis). While the surgery helped alleviate my venous and arterial symptoms, I unfortunately did not get any relief from my neurogenic symptoms. I’m sure you all know just how stubborn neuropathy can be. Over two years post-op, I was still in immense pain and had tried everything I could possibly find to try and get some relief, to no avail. My dad came across INF when doing research into chronic pain therapies in the US (we are Canadian) and set up a consultation with Dr. Mark Bussell (DPT who developed the therapy). He changed my life.

I was treated by Dr. Bussell and another one of their physical therapists named Paul, however everyone at this clinic is extremely kind and very dedicated to making their patients feel better. Dr. Bussell is unlike any doctor I have ever come across: kind, compassionate, dedicated - it is easy to see how much he truly cares for his patients. I had 5 weeks of therapy, and now a home program to do myself, and for the first time in years, I am completely pain-free and off of all medications.

I also made major modifications to my diet. It seems I have a minor form of MCAS (probably from the trauma to my nervous system) and so I had inflammatory reactions to gluten, dairy, chicken/eggs and soy. Cutting these out of my diet helped immensely. The modifications can be difficult at first, but once you start noticing a difference in how you feel, it makes it much easier. I no longer have the desire to eat any of these foods (as they cause me pain)!

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Replies to "Hey guys! Just thought I’d add my experience with INF here as well, in case anyone..."

Thanks for your post.
I am just about to book in to have the same treatment.
You have given me confidence in it.

Hi Julia! Thanks so much for sharing your story. My sister has been struggling with post-surgery nerve compression and we've been considering Loma Linda. We're in the east coast and are nervous about making the journey until we've spoken to at least one person whose undergone the treatment. Would it be alright to connect to learn more about how your experience was? Do let me know! Look forward to hearing from you!

Would you please tell me more about your experience-i.e. where you stayed while there-how long where you there? 5 weeks ? I do have very good insurance-did your insurance pay for alot of the Loma Linda cost? How long did it take to get your appointment? I have had terrible pain
for many years now-started when I had COVID Been everywhere in Atlanta and really getting nowhere. Thank you so much!!