Retuximab infusions
Has anyone had Retuximab infusions for CIDP?
Had a visit at my Neuro doc today, and since IVIG didn’t work for me, this is an option.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Has anyone had Retuximab infusions for CIDP?
Had a visit at my Neuro doc today, and since IVIG didn’t work for me, this is an option.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hi @harley22
The medication is Rituximab or Rituxan. I had it to treat my cancer.
With the correct spelling you can search easier including pubmed and NIH. Some infusion medications take a while to start working, they need to build up in your body, I am receiving IVig.
JFN
@harley22 Will this be your 2nd drug for CIDP? You know, it can take tries with several drugs before the right drug comes along. Most of these drugs were not even heard of 10-20 years ago.
Go into the infusion with a massive positive attitude and tell your family that, they, too, must be positive! What will you treat yourself to after the infusion?
I have an auto-immune form of polyneuropathy and like you, IVIG didn't help me at all, but Rituxan did. I just finished a series of 6 treatments back in May (combined with chemo because I also have a rare blood cancer). They expected my neuropathy to be permanent so the goal was to just keep it from getting worse, BUT.... I have actually started to regain feeling in my lower extremities. It comes with its share of side effects, but it was worth it in my case.
IVIG takes at least six months to start working. It helps the neuropathy from progressing. Most people get inpatient and stop it before giving it a true chance. Mine is autoimmune.
I am trying the Rituxan for RA. I also have been diagnosed with CIDP. Along with severe axonal sensorimotor polyneuropathy, autonomic neuropathy and small fiber neuropathy. Hopefully, there’s not another neuropathy.