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Atypical lobular hyperplasia: Did you have surgery?

Breast Cancer | Last Active: Dec 17, 2023 | Replies (79)

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@fronterae

I was diagnosed with ALH and microcalcifications in December 2022 and had excisional biopsy on December 30th. They are monitoring me with MRI and mammogram every 6 months. In my last mammogram July 2023 they found more clusters of microcalcifications. I had one biopsy August 1 and another one August 16, same breast different locations. Both have ALH and microcalcifications, one radiologist suggested surgical consultation for the first biopsy and other radiologist suggested monitoring for the second biopsy. My surgeon suggested for the first one just monitoring and waiting for his response for the second one. I know it’s not cancer but a high risk patient. Do I need to get a second opinion?

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Replies to "I was diagnosed with ALH and microcalcifications in December 2022 and had excisional biopsy on December..."

Thinking of you and yes certainly a second opinion is warranted! I go to Dana Farber in Boston and I know they like Mayo have a team that covers second opinions. Based on others here your ALH is a certain subset and needs a team that is well versed in that subset. Please keep us posted...xo