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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@kadet

Hi! My name is Kathy and I had an ileostomy on 7/28/23. I am learning new tips daily from my doctors ostomy nurse, the ostomy supplier has a peer to help me through the questions that come up, once a week. It’s been a whirlwind of confusion and learning what brand is best to the actual steps to put on the ostomy bag. I had a major skin irritation from leaks which have healed with advice on what to do. I am waking up to a bag that feels like a balloon, I’ve learned not to use the powder unless there is skin irritation, and to use the less products the better. I was told by the rep that the spray adhesive is no longer made and that I can use the cement however my peer who has an ostomy for 5 years says no to the cement. I’m reading about swimming and showering in your posts.
Any advice for me would be appreciated and welcomed. I am a school bus driver and have short breaks between runs and a break from 9:30-1:00. I start at 6am and end the day at 5pm. I am to return to work sept 11th.
I do like the coloplast convex bag. Part of the base piece goes over my bellybutton so I’ve been told to turn it just a bit to stay off it. It doesn’t seal well there. Thank you for your advice, Kathy

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Replies to "Hi! My name is Kathy and I had an ileostomy on 7/28/23. I am learning new..."

I have had an ileostomy since 2009. Things will get better for you.
I use the Coloplast deep convex pouch. It may help you to use a barrier strip on the bell button side.

It may be that another manufacturer's pouch would work better for you. It took me a while to get the best fit for me. Most manufacturers will send you free samples to try. Just go to the company websites.