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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Oct 4 1:13am | Replies (240)

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@shaylala

It’s been a while (thankfully) but I remember waking with the first one in September and didn’t happen again for a few nights but after a couple of weeks they hit every night between 2 and 3am. I had noticed the severity would decline after 6am (when I’d get a cup of coffee) but didn’t make the caffeine association until I found this support group. I was shocked that heavy hitter prescription pain meds did not help at all but caffeine provided some relief. The problem, on top of the pain, was the lack of sleep, which caffeine didn’t help. I began to dread going to bed since I knew what was coming. This went on for 4 months and several different medications after ruling out the life threatening possibilities with MRI’s and CAT scans. So, fortunately my Neurologist thought to hit it with Prednisone after trying several other meds that many others on this site had tried. I think it was 10 days or so of the prednisone where you start with a higher dose and gradually taper off. Within a couple of days the timing of the headaches was disrupted and only had one more headache after finishing the meds. My neurologist was Meredith Snapp in Charlotte, NC. My thoughts and prayers for you and all who suffer with these terrible headaches.

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Replies to "It’s been a while (thankfully) but I remember waking with the first one in September and..."

Thank you ! i will discuss it with my neuro , but if im not mistaken before the prednisone you were dealing with these type of headaches for months not years right? The fact that it helped solve the problem rather than coming back full force when you stopped the prednisone is interesting.