Survivorship: anyone else struggling?
Anyone else just starting the survivorship journey and scared? Diagnosed with endometrial cancer in November. Surgery in December. Chemo January to May. Radiation and brachytherapy just ended. Now am felling on my own to monitor my health and scared to lose all the support I’ve had these past months. I read one book that describes survivorship as the true potential fir torture exists. Trying to find the new normal amidst surveillance. Anyone else struggling with this?
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
@cancerback
I also am told that I look great even now, 8 months after my last treatment. I wonder if people don't know what else to say. It is certainly a journey we would never choose for ourselves to go through. I am glad you are doing well. Hope you have a nice weekend!
Thanks! It sounds like you had a new cancer, not a recurrence, so you may well be on the road to recovery. I had 4 years of no evidence of disease before I had a recurrence. I wish you luck.
I was originally diagnosed in Feb of 2022 and told that it was all contained to my uterus (no treatments at that time), but had a reoccurance in September of that same year.
Where did your cancer show up in September 2022 and what treatments did you have?
@jomamapb, I had an 8mm tumor on the vaginal cuff. It was found during a surveillance exam (every 3 months). My gynecological oncologist at first thought it was scar tissue and biopsied it. He was quite surprised when he called me a couple of days later. I had 28 external and 3 brachytherapy radiation treatments. I finished just before Christmas last year.
Thank you. I will be sure to ask my urogynecologist next exam. My next gyne oncologist visit is in 4 months.
Have you had any long term side effects due to the 28 external radiation treatments or brachytherapy?
@jomamapb
I have some occasional back pain that I never had before. My radiation oncologist doesn't think it is linked to the treatments. I am almost 50 so who knows.
So no effects on your gastrointestinal tract or bladder?
@jomamapb
Not really. I do seem to need to urinate a little more frequently and have had a couple UTI's and I never had one prior to the treatments. I had diarrhea quite frequently during the treatment process and for way over a month at completion, but that is no longer an issue.