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@misu

Oh, dear, completely forgot to mention that neuropathy did turn up five years ago, but till now I hadn't heard of the PPI connection. Plus, I'm not convinced it really is neuropathy ... so there's that. All comments welcome, of course.

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Replies to "Oh, dear, completely forgot to mention that neuropathy did turn up five years ago, but till..."

Sorry Misu. I accidentally hit the wrong button! 😕 Anyway, I an somewhat relate to where you're at.

Regarding my personal experience with PPI, Protonix, I had tried absolutely everything beforehand, and had gotten NO relief. I remember being in serious agony, as the medications that my insurance wanted to cover did nothing to relieve my symptoms. The esophagitis was excruciating to me. My doctor and I went down the road, trying more and more intensive treatments, in hopes to control my GERD. Finally, my doctor wrote a letter to the insurance and explained my condition as it worsened to finally get my onto Protonix. Once I got on it, my symptoms finally became controlled for those 8 years. So, when I went off it, I was pretty nervous about the GERD blowing up again. But, so far, so good. Thank goodness!!

Anyway.. Are you working with a well-respected and knowledgeable provider that regularly handles neuropathy? If so, I'd recommend asking for clarification and reasoning on how they believe that you're being affected. Perhaps from there, you can then ask how they believe their recommended treatment can help you through this.

I wish you the very best in finding the right treatment for you. .. Hugs!

Heather