Hello Mari (@mari), if you are not on Facebook you will need to create a login, then the link should work. Once you join the group, please read the new member Welcome message which explains how to get started. It is a lot of reading but it is necessary and it is worth the time. Here is the link to the closed group - https://www.facebook.com/groups/SPNPD/.

Before you start the protocol, please have the discussion with your doctor. I gave the list to my PN who ran them by the Mayo pharmacist and I received sort of a ho-hum response which is what I expected. I only have numbness in my legs and feet and there are no drugs to treat numbness per my PN and my Mayo neurologist. They can only offer drugs to treat the pain which is caused by damaged nerves. The drugs come with a lot of side effects, none good. The protocol supplements work on repairing the damaged nerves which in return eliminates the pain and reduces the numbness. I have been taking the supplements since September. When I started I had numbness (no pain) in both legs from just below the knee to the toes. Now the numbness seems to start just above the ankles. No two people are the same and others that started with PN with pain and numbness were also taking the standard PN pain drugs - gabapentin, lyrica, etc.. Those people have been able to get off of the drugs which are not needed when the pain goes away. IT IS REALLY IMPORTANT that you discuss this with your doctor. If you read through the group you will be able read success stories from group members. I would join the group and read, read, read before you make any decisions. Also, remember that you are your best advocate and the one who makes the final decision.

Most of the research done for peripheral neuropathy addresses the pain and how to block the pain, etc.. I recently read an article on the Foundation for Peripheral Neuropathy's website but can't find it again. It referenced the following NCBI link which may provide more hope for those suffering from peripheral neuropathy - https://www.ncbi.nlm.nih.gov/pubmed/22201810.

Hoping for a better 2017 for all of us...

John

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