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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@iverwig

Hello @hopeful33250 I have no problem in sharing my experiences at all.

I was initially experiencing pain in my midsection, like a squeezing type pain. I can’t remember how long I was experiencing the pain prior to me going to the doctor but I would say at least a couple of months but it was probably longer. The pain would come and go and me being stubborn never mentioned anything to anyone to include my wife who happens to be a medical provider. To be honest I initially thought it was just indigestion and I had been healthy my entire life so I kept it to myself. I should have known it wasn’t indigestion because of the severity of the pain I was feeling. I would feel the pain on consecutive days and then I would go a few days without feeling anything. That was the only symptom I remember experiencing.

The week I was scheduled to go in for my annual physical I finally mentioned it to my wife and she told me to mention it to my PCP which I did. I was scheduled for X-rays and that is how they saw the mass.

In reference to the type of chemo I did a 3 day cycle every 3 weeks of Cisplatin and Etoposide. They gave me the Cisplatin on the first day and Etoposide all 3 days. I also had radiation the same time as the chemo. Due to the location of the mass they treated it like they would lung cancer.

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Replies to "Hello @hopeful33250 I have no problem in sharing my experiences at all. I was initially experiencing..."

I so appreciate you sharing your story, @iverwig. It is helpful to others to know that often this type of cancer does not have the same look and feel as other cancers do.

How much longer will you be having the chemo? Will you be having follow up tests or scans in the near future?