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@lynguist

My mother & brother were both diagnosed w/lung ca, stage 1, so, due to heavy scarring in my lungs (thanks to my history of smoking, chronic bronchitis & pneumonias), I had yearly CT Scans, since 2012. I had nodules, which were being watched closely. In 2020, a small nodule became cancerous, in situ, stage 1. I had an upper-right lobectomy & theoretically needed no further treatment. My internist, however, felt that with my family history, I should start an Immunotherapy regimen, all Out-Of-Pocket. Optivo, Yervoy, Tecentric, Tarciva, et al. I was getting overdosed and feeling sicker weekly. They stopped the cancer drugs & just gave Vitamin C, crap like that. But I continued to worsen. One night I drove to the hospital because I was so agitated. They gave me saline & a Valium! The next night I was much worse & my friend took my to a different hospital, where I was diagnosed w/liver toxicity & Guillaum-Barre. That was 3 years ago. I have numbness in my feet, and I never take another Monoclonal Antibody EVER,

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Replies to "My mother & brother were both diagnosed w/lung ca, stage 1, so, due to heavy scarring..."

@lynguis- Welcome to Mayo Connect. That is a nightmare story that you have lived through. I can't believe all the drugs that you were given at once. What had they been thinking? Did you keep all of your labs, scans, and tests from that hospital? If you have, don't throw them out if you decide to take legal action against them.

I'm so sorry that you went through this horrible time. If if can ask, are you taking anything for your illnesses now?

Here is a group that you might want to take a look at:

https://connect.mayoclinic.org/discussion/gbs-guillian-barre-syndrome/?pg=2#comment-784468

How are you doing now?